Welcome to the Rare Disease Series.
Explore our interviews featuring patients, caregivers, and physicians from the rare disease community.
We are pleased to release the first of several short films which aim to highlight the challenges and lives of those affected by rare diseases. In the upcoming months we plan to explore what rare disease means for people who suffer from them, their families and those who treat them plus a few additional surprises are planned!
WATCH THE RARE DISEASE SERIES TRAILER – hear from our patient advisor Sheila Khawaja about the aims of the series and how to get involved. We are looking for patients, families and healthcare professionals to share their stories.
The story behind the series
The People with rare conditions, their families and those who treat them have incredible stories to tell. They often struggle to be heard, which is why we kicked off this ambitious film project to compile these stories into a compelling narrative to share with the world.
The goal of the project is simple: shine a spotlight on the people impacted by rare diseases, this includes people living with a rare condition, their friends, families and work colleagues and not forgetting those who treat, diagnose and support them.