Interview with Lindsay Weaver CEO Metabolic UK

INTERVIEW METABOLIC UK In support of Rare Disease Day 2020 @Swii.ch are delighted to release the first in a series of videos in collaboration with @Metabolic Support UK. In this short film, Lindsay Weaver, CEO of the charity explains to us the power of #patientcommunities whose combined strength, determination and solidarity can bring about change...
Findacure patient advocacy

Patient advocacy in rare disease with Findacure

INTERVIEW Patient advocacy in rare disease Nick Sireau, CEO and founder of Findacure highlights the work of his enterprise and how this not for profit organisation can help other, less mature patient organisations grow, and scale so that they can fully support their followers in the area of rare disease and eventually partner with others...